Hello Cysters!

Welcome to Cysters United! I’m Barbara, and I was diagnosed with PCOS at 17. Now at 21 I’ve faced only a few of the trials that women with PCOS face everyday. A week or so ago I was doing more research about our shared syndrome, but unfortunately none of the information I found was what I was looking for. All of the books published out there concentrate solely on dieting, how to get pregnant, and what PCOS can cause later in life. I have that information already, and I’m sure many of you do as well. What I was looking for was information for women with PCOS by women with PCOS. I wanted to know what other women had gone through while dealing with it. I wanted to know how they handled things:  criticism about their weight, questions about when a baby would be on the agenda, callus remarks from strangers, doctors not really listening, etc.

Then after posting on my own blog about this lack of personal input from women like us, a friend said we wouldn’t find anything like that out there unless we did it ourselves. As a result I asked for help from her and from the other women in a small yahoo-group that we’re a part of. So here we are creating this blog for women with PCOS, by women with PCOS, about everyday life that doesn’t revolve around rules for dieting, treatments or suggestions on how to get pregnant, doomsday prophecies of diabetes and cancer, or doctors who no longer care about patient well-being beyond their own bank accounts. After all, we’ve heard those shpeels a thousand times over already.

Barbara (pezzdemon)